FINALLY! Sara has a diagnosis! If you haven’t heard, my sister Sara has been dealing with some medical issues for 5 years now, ever since she gave birth to Joey. She’s been exhausted, swollen, jaundiced, in pain, the works. She’s had a million tests and procedures, been to see a million doctors and specialists. Last year I took her to Wake Forest for tests. That didn’t go well. Finally this summer she went to Duke and they figured it out! Sara has Hereditary spherocytosis. Now that they know what’s wrong with her they can fix her! And unfortunately that means surgery. She will have to have her spleen removed in October, a week or so before Halloween. Because of the disease her spleen isn’t functioning as it should and that is making her sick. Removing it is her only real option. The surgery is Laparoscopic and her recovery time will be pretty short, thank goodness. The surgeon taking care of her does all of the Charlotte area splenectomies so she’s in good hands. I’m so excited for her to be able to get back to a normal life finally! No more steroids! Less blood draws! (she’s been having her blood tested every 2 weeks for years now). She’ll be feeling good in just a few weeks! Hurray! So please say a little prayer or send some good healing vibes on October 25th!
Forgot to tell you, so when CSP & I went out for our anniversary at the beginning of this month everything was great right? That is, until about 4am the next morning. I started throwing up and it did NOT stop for what felt like years. I ended up being sick for a good week. Fever, chills, lots and lots of puking. It caused us to miss our last adoption class. I was so upset! Luckily we’ll be able to make it all up. It’s gonna take a while to get it scheduled, but we won’t have to start over or anything. Yay! Also luckily I had exchanged contact info with our favorite people in our class so we can keep in touch. Yay!
We’ve been home a week and I know, I know, I still don’t have all my pictures edited and I’ve yet to blog word one about Vegas. But I’ve been busy being sick. In Vegas a couple of funky symptoms popped up having to do with some of my lady lumps. Once home I have just been exhausted. I mean, can barely hold my eyes open. I made doctor appointments but Tuesday night things got a little scary. I was shaking, dropping things, could barely stay awake. So CSP took me to the ER where they diagnosed me with mastitis, gave me some antibiotics and sent us home. Wednesday we saw an OBGYN who said it’s NOT mastitis but fibrocystic breast disease. She scheduled me for a mammogram & an ultrasound for the girls, told me to start taking vitamin E and Evening Primrose Oil and sent us home. I became a little overwhelmed that night. I mean, really? Another disease? My bubbies are purely decorative. HOW could they be diseased? I’m so frustrated & tired of being in pain! I had myself a good cry and begged Lola & Trudy not to go into the light (had to name them finally, since they’ve been the center of attention lately). I’m not convinced that I have the fibrocystic breast disease. Seems my most disturbing symptom (which I am NOT going to post on the internets) doesn’t affect most people with the disease. Plus, it just all came out of nowhere. After my test results come back next week if I’m still not satisfied with the diagnosis I’ll get a 2nd opinion.
In the meantime, when I can stay awake long enough I’ve been editing our pictures. Over 300. I’m about a third of the way through. But I promise to tell you all about Vegas, baby. Soon. Hang in there. Like Lola & Trudy.
We’re home! We had a fabulous time and all the updates are coming soon. Right now though I’m dealing with a couple of health issues that popped up in Vegas. One is pretty scary (and strange). A full day of doctor appointments on Wednesday will hopefully take care of this.
Thank you all for my wonderful birthday wishes! Y’all are the best! My Blackberry died a horrible death in Vegas on our 3rd day there so if you were following our adventures via Twitter or FB and wondering why the updates stopped, there you go. I’ll be replacing the Crackberry as soon as I can get to the store…with an iPhone! Yay for birthday money!
Time for an update on my sister Sara’s health situation. To review: for months and months now she’s been dealing with anemia & an enlarged spleen. Doctors in Charlotte have not been able to figure out what’s wrong with her and they also can’t decide if they should take her spleen out or leave it in. She is tired all the time. She is swollen to the point that she looks pregnant. She can’t ride in a car for more than an hour without pain. Sleeping is a problem because of the pain. A few weeks ago we went to Wake Forest University to see a doctor that was supposed to diagnose her. Finally her blood tests came back. They STILL don’t know what’s wrong with her.
Last week her doctors here put her on a new medication. Continue reading
Gigi is going to kill me for posting about this. But you know when you’re having a conversation and you think “OMG I have GOT to blog about this”? Well… Continue reading
We live in a big city. Well, not the city proper, but a suburb. We live in the largest city in NC. And the doctors in this city have officially run out of tests and idea when it comes to what is ailing my sister. So Monday we are hopping in the car and driving to one of the big Universities in our state so they can run tests that apparently can’t be run in the largest city in the state. I swear, if they don’t figure out what is wrong and fix my sister Ima gonna have to go redneck on somebody.
Well, March is already a doozy! Sunday we got 3ish inches of snow and had a THUNDERSNOW storm. That was cool. Thunder, lightening, and snow! Most of the snow is now gone, which is a shame. I love it when it snows. Monday afternoon I dropped CSP off at Marc & Sara’s for the day. He and our BIL Marc spent the afternoon smoking ribs. I went back over a couple hours later and made some yummy chili & focaccia bread for the gang. Then we played my new Cranium Wow game for the first time. BEST. GAME. EVER. We laughed SO hard.
My ear infections and sore throat have not responded to antibiotics. I’m allergic to penicillin so my options are limited in that area. I talked to my doctor yesterday and she’s turning me over to an Eye, Ear, Nose & Throat specialist to discuss putting tubes in my ears. Oy. I’m still running a fever on and off too. Not the most romantic way to spend your 8th anniversary. Right now it hurts to even eat oatmeal. Boo. Hopefully I’ll feel better later in the week and maybe we can go out for dinner.
The official note she sent to the fam & friends: I went to see the hematologist again today and he says we are now in stage 2 of the process, which is the figuring out exactly what it is stage, because there is not much more improvement and he can only keep me on steroids for so long. That being said, I am better now than I was when I first started seeing him months ago. The steroids did help a quite a bit. He did say that he’s pretty certain that it is not lymphoma, which is really good. It actually might be a defect that I was born with. I will go to Presbyterian Hospital on Thursday morning to get some tests done and depending on those results I may be going up to Chapel Hill for a day of tests. Fun. lol! But whatever it takes is fine. I’m tough. 🙂 And then we’ll have an answer and be able to move on!
I’ll let you know more when I do. Thank you again for thinking of me. 🙂
Now, if it is a congenital thing then Jake & Joey may need to be tested. Same for me and my mom even. This is so frustrating. I wish they would just fix her.
I had labs today but did not see the dr so this is only a partial update. My levels have gone down and my riticula (sp?) count is still high (meaning my red bloods cells are still being destroyed and the prednisone treatment didn’t work again). SO, I’m not sure where we go from here. I will let you know more next Tuesday which is when I go to see the dr again. Thank you again for your thoughts and prayers. And don’t worry, we’ll figure this thing out. I have the best dr I could ask for, so it’s only a matter of time. 🙂
Please continue to pray that this is fixable.